Wednesday, November 7, 2012

Trying something new

For nearly nine years now I have sat down every night with pen and paper and recorded the days happenings.  Occasionally, something to good not to share happens and I tell anyone who will listen.  The responses I hear on such occasions are always the same, "you should write a book" and "your life is so interesting".  I'm not sure interesting is the word I would use to describe my life, but it has been quite an adventure so far.  I have been married to an amazing, hard working, handsome man for nine and a half years.  We have four kids and I need only to say a few things about them for you to understand why my experience may be interesting.

Our oldest son is eight and was diagnosed three years ago with Asperger syndrome/PDD.

Our second child was diagnosed at 21weeks gestation with Trisomy 18.  She was stillborn at 33 weeks.

Our second daughter was born three years ago. She is a delightful, rambunctious ball of drama.

Our youngest son will be six months old next week.  He was diagnosed at 32 weeks gestation with hydrocephalus.  Since birth he has been diagnosed with Agenesis of the Corpus collosum, torticollis, scoliosis, plagiocephaly, and polydactyl.  Before you go and look all of those big words up, let me say that they sound really scary but he is doing really well.  We see a lot of specialists but really the only thing that has happened is our bills and vocabularies have both increased dramatically in the last six months!

Some days it all feels really overwhelming....other days I watch my amazing kids and see their accomplishments and I wonder why I am so blessed to have been chosen to mother such amazing spirits.

If I've learned anything in the last nine years it has been to celebrate small miracles, be so grateful for abilities, and never stop trying new things.

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